Private support space
Community
This is the quieter support layer for families who want to hear from people who understand the condition, ask practical questions, and feel less alone.
What this space is for
Come here when you need people, not just pages.
- Ask how other parents handled diagnosis, appointments, and day-to-day overwhelm
- Get practical family perspective that does not fit neatly inside a medical page
- Feel less isolated while still keeping the tone careful and parent-first
Before you join
What you can expect inside
- Newly diagnosed questions and parent-to-parent guidance
- Practical threads about appointments, routines, and school or home life
- A private support environment rather than a public social feed
This area is for support and lived experience. It does not replace clinical advice or urgent medical care.
